Dementia: ‘We’ve Gotta Get Out Of This Place’

Posted at 2.45 am

 

It’s going to be very noisy here this morning as the windows and doors are going into our Sun Room today.  We need to be ‘outta’ here by 8 am when 4 workmen will begin proceedings.  Our options for an away day are as follows:

  • A Pamper Day for Maureen at a local Care Home  – plan to stay with her.
  • A day trip to Nottingham.
  • Out and about in Grimsby and Cleethorpes.
  • Watching proceedings in the relative quiet of our rear garden.

At 2.45 am, Maureen wants to go home, my status is fluctuating and I have no idea how we will spend the day.

I also have no idea where all those years have gone since I saw The Animals at the Cavern in Margate when I was a slip of a lad.

Oh dear by the sound of it she may have just taken matters into her own hands and legged it:  wrong again she’s just come back!

4 thoughts on “Dementia: ‘We’ve Gotta Get Out Of This Place’

  1. Oh your life’s is so similar, and sometimes you can’t type quickly enough for the change in presentation can you? (referring to the ‘she has done a runner – oh no it’s ok’ at the end of you post). There are many moments that amuse me in a day too (when rob stands up and makes an announcement to the chairs and table (he is at work), or tells me that the (fictional) dog now has a limp and am I taking it to the vet. You do very well with summing everything up – but I know that moment by moment things change and in the meantime we as carers are constantly adapting – thinking quickly on our feet to deal with the changing situations throughout every 24hr period. When precious moments come – when they know who we are – or at least they like being with us whoever we are – we take what we can get and treasure it. It’s mentally exhausting though – and in many ways a thankless task – but we do it cos we love them dearly – they are very special to us and we want to keep them safe. How on earth does anyone who is not fortunate enough to be very intelligent cope with caring in the way you and I do? Or who are elderly and frail themselves? … they don’t I suppose. They muddle through until it is just too much!!! Your adaptations and strong resolve are admirable – and I fully understand your commitment to Maureen’s care. Thank you for your blogs.

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    1. I wonder Gill if we would cope with a peaceful life after this. Those fluctuations that give us different challenges within minutes are so stimulating. Anyone who suggests take each day as it comes would be in for a short sharp shock if they ever have the opportunity to be a Care Partner for someone with dementia.

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  2. I know what you mean paul. … they are so stimulating and at times I think I am as co used as rob (it’s hard to keep up when tired). We will
    Most certainly miss them terribly … and taking a second at a time is more appropriate – especially when they are on a mission! It’s amazing what is going through their head when we are privileged to find out: at the day centre (excellent one in hernebay – he doesn’t mind going to) he didn’t eat any lunch. In the car he explained that he and another chap were going to a football match and were leaving at any time, but were waiting for tickets. By the time he realised they had gone astray and he couldn’t go to footie – it was too late. He was starving! Of course there never was a football match, tickets or companion – all part of his world. Who would have thought it! Thanks again Paul.

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    1. Life in a parallel university is fun Gill. We are on holiday here or being kept in a Care Home against our will. It changes so I have to be on my toes or I make things incredibly complicated.I’m not sure where we’ll be after Maureen’s trip to the bathroom. Standing by waiting for the next mission. ……

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