Dementia: Running Out of Gas

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Maureen and I were both running on empty yesterday afternoon as we tried to catch up on an unproductive morning.  None of our plans for the morning came to fruition as Maureen eventually gave up trying to find comfortable clothing and slept off her frustrations.

Playing catch up in the afternoon led to exhaustion and when we got home we both took to our downstairs beds for a couple of hours. Siestas seem to help us regain our energy but we are yet to experience a satisfactory outcome from any attempt to provide significant respite. 

I’m meeting Officers of the Clinical Commissioning Group this morning to raise concerns about Maureen’s experience in Ladysmith Road Care Home.  The CCG’s provision of  dementiaservices through NAViGO has recently received deserved national acclaim.  At today’s meeting I will register our thanks for the excellent support we have received from the local set up.  However, I also want to raise a number of points about how respite at Lady Smith Road had a negative outcome for both of us.

Hilary will be here this morning: she is a mature and very capable carer.  I’m hoping that she can make some sort of impact on the ongoing clothing crisis. 

About Remember Me

I am a retired adult educator. My wife had a stroke in February 2014 and now has mixed dementia. Her recovery from stroke has been exceptional apart from 50% loss of peripheral vision and vascular damage. 'Dharma For Dementia' is my approach to being Maureem's Care Partner: it aims to end the suffering of 'Prescribed Disengagement' (Swaffer) .
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4 Responses to Dementia: Running Out of Gas

  1. AmazingSusan says:

    Thanks for speaking out on unsatisfactory services, you’re doing great work.


    • Remember Me says:

      Hi Susan good to hear from you. I say it as it is: praise the good and raise concerns about things that are not right. Be interesting to see how I’m received this morning. I’ll keep you posted.


  2. Let us know how you get on x x


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