Dementia: Now I Understand


YesterdayI gained a much clearer understanding why Maureen’s experience in Ladysmith Road Care Home was so traumatic:

  • The local CCG have changed where they commission beds for Respite Care.
  • Ladysmith Road Care Home are not allowed to move residents from the Orchid Suite to a more suitable location.
  •  Care Homes are being encouraged to reduce admissions to A & E.

If had known respite care was going to result in Maureen being placed in an environment that was far from person-centred I would have chosen to tough it out. My respite has been counterproductive leading to further stress and exhaustion.

Following my meeting with the Manager of the Home Treatment Team I now understand that the Best Interest Meeting is an opportunity to determine a positive way forward.  I believe there is now a genuine understanding of the need for a fundamental change in the approach to supporting us on this unforgiving journey.


About Remember Me

I am a retired adult educator. My wife had a stroke in February 2014 and now has mixed dementia. Her recovery from stroke has been exceptional apart from 50% loss of peripheral vision and vascular damage. 'Dharma For Dementia' is my approach to being Maureem's Care Partner: it aims to end the suffering of 'Prescribed Disengagement' (Swaffer) .
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